Chris Robbins Runyon, a friend out here in Kaaawa, recently posted a version of this story on Facebook. It’s quite a tale of someone getting ground down by the medical-industrial-insurance bureaucracy. First Insurance certainly comes out looking pretty bad. Perhaps someone over there will see this and intervene with a bit of sanity.
So here’s the story as told by Chris.
Aloha. I need help. Please read my story.
About 2-1/2 years ago, I was in a swimming pool for a swim test for my employment and experienced an airway closure, likely due to the pool being poorly cared for.
After several minutes without an airway my heart began to fail. I was resuscitated after the use of an automated external defibrillator (AED) and CPR. The individuals who saved my life were quite certain that the pool was the cause of the my airway closure. Doctors at Queens Medical Center refused to listen and began to test my heart and never addressed my airway. Nothing was found wrong with my heart but due to the AED being used out of hospital, I was forced to have them place an implantable cardioverter defibrillator (AICD) in my chest.
After the device was implanted, the doctor who put it in refused to take workman’s compensation insurance and I was left with no medical care for the situation. I was told by the workman’s comp insurance carrier, First Insurance of Hawaii, that all would be taken care of and that all I had to do was provide them with any and all information pertaining to the case.
I was sent to an independent medical examiner and the device was deemed unnecessary. After that I was told that I would not have to go through a hearing or retain counsel. Four months later I received a letter informing me that I would have to stand before the Labor Board and that I was going to be found non-compensable and that the hearing was in 10 days. I called First Insurance of Hawaii and was told this was a formality.
Then just two days before the hearing, I was told to retain a lawyer.
I have documented every email and every phone call. I was not able to hire a lawyer in time, but was more than prepared to represent myself, I had been building a case and documenting since day one. First Insurance of Hawaii would not allow me to represent myself, and asked for an extension so that I could hire a lawyer. I did this, and presented all the information that I had been prepared to give at the hearing. My lawyer used all the information that I gave him and we won the case over a year ago. First Insurance of Hawaii went for an appeal and then withdrew it.
At this point in time I still had no doctor to care for the device or to find out what condition I had. The defibrillator malfunctioned and began to shock me. I went to the emergency room at Pali Momi and the device was found to be malfunctioning and was shut off. The doctor who implanted the device was contacted and he would not allow for me to be treated, I was discharged, and told I had to see him.
He refused to treat me as I wished “remove the device with no repeat implantation”, he would not touch me. First Insurance of Hawaii claimed I was not taking care of myself and made claims that they would pursue a 3rd party law suit against the manufacturers to get their money back and no longer be responsible for the situation.
Through out all of this, from day one I have been in an great amount of pain, but have dealt with it through exercise and healthy living, no drugs, no health plan. I am a very active, athletic individual and this was unacceptable to me. I went to occupational health service at Kaiser Permanente with the court decision and forced my way into a cardiologist. I went through physiological evaluations, underwent a painful electrophysiology study without sedation, and finally got the clearance to have the device removed.
The device was successfully removed in March, which was an extremely risky procedure. I later received word from my lawyer not congratulating me on surviving all of this but to inform me that Kaiser did not go through the proper channels and First Insurance of Hawaii will not pay. I double and triple checked at each appointment that all this was going through the proper channels.
I am so lost! I need a voice! I almost died twice, the test the doctors ran on me were to induce death, and I survived a nightmare situation. I have no where else to turn.
I am a wife and mother of two children, as well as a graduate student in microbiology and a working marine biologist. I am doing my best to juggle all of this, but my voice has been stolen from me.
If I could just get this story to the right person(s) I know that the right thing will be done. I am not asking for any kind of award, just justice. Through all of this I have been told by my attorney that this is the American way, but honestly I do not even feel as if I am being treated like an American citizen.
What I have presented to you is just the tip of the iceberg and nowhere close to all that has happened. Now with the AICD removed I am told that I have no injury, therefore no case.
How has this system gotten so out of control?